Traverse City Record-Eagle

Latest News - Mobile

September 23, 2013

The 'Pickle Jar Project'

TRAVERSE CITY — Kimi Baker and her husband, Bobby, never leave the hospital before they read a bedtime story to their daughter, Penelope.

It’s something the couple has done since the day they learned Kimi was pregnant, and it’s something they refuse to stop, even on the worst days, said Kimi from the hospital Friday.

Then, each night before they walk away from DeVos Children’s Hospital in Grand Rapids for the night, they move aside the tubes and wires to kiss their 2-week-old girl goodnight. The Bakers fill their 10-minute drive to their home in Comstock Park with hope and prayers that the next day will bring better news.

Sometimes, it seems like there’s been only bad news since doctors informed them they’d detected a heart defect in their baby during a routine ultrasound appointment in May, said Wendy Warren, Kimi’s mother.

They were told then that the baby — they had nicknamed “Pickle” because they wanted its gender to be a surprise — would need surgery immediately following birth to stay alive. She had Hypoplastic Left Heart Syndrome (HLHS).

And they learned there’s a 30 percent chance she won’t survive her first year. She had undergone six surgeries by Friday, 11 days after she was born.

“We’re just so sick of bad news,” said Warren, who said Kimi grew up on the family’s Old Mission Peninsula cherry farm. “We’ve heard the term roller coaster more and more times in the past few days. What was supposed to have been a simply joyous occasion has become anything but.”

And last week they learned Penelope has a severe immune disorder that only can be treated with an expensive surgery not covered by the family’s insurance.

One silver lining persists: a community effort in Kimi’s hometown called the “Pickle Jar Project.”

Text Only

Twitter Updates
Follow us on twitter
Associated Press Video
Facebook Is Officially A Mobile Company 'Fifty Shades of Grey': Watch the Super Sexy First Trailer Now! Reports: Ravens RB Ray Rice Suspended For 1st 2 Games Of The Season Air Algerie plane with 119 on board missing over Mali Diamond Stone, Malik Newman, Josh Jackson and others showcase talent Free Arturo - The World's Saddest Polar Bear A Look Back at Batman On Film Through The Years LeBron James -- Dropped $2k On Cupcake Apology ... Proceeds To Benefit Charity Snoop Dogg Says He Smoked Weed at the White House Raw: Fight Breaks Out in Ukraine Parliament Chris Pratt Interrupts Interview To French Braid Intern's Hair Shirtless Super Mario Balotelli Dances While Ironing - @TheBuzzeronFOX Whoa! Watch "Housewives" Star Do the Unthinkable LeBron apologizes to neighbors with cupcakes Justin Bieber In Calvin Klein Underwear Shoot Samsung Pre-Trolls The IPhone 6 With New Ad Jimmy Kimmel Introduces His Baby Girl Swim Daily, Nina Agdal in the Cook Islands Guilty Dog Apologizes to Baby for Stealing Her Toy Prince George Turns 1 and is Already a Trendsetter